Around that same time, as part a routine physical exam, Keith learned that his liver function tests were elevated. He was diagnosed with Primary Sclerosing Cholangitis (PSC), a rare autoimmune liver disease that currently has no cure and will ultimately require a liver transplant for survival. It wasn’t long after that the Tully family found the American Liver Foundation’s Boston Marathon® Team, which provided an opportunity to raise awareness and funds for liver disease research and advocacy efforts.

The Tully Family, who together have raised more than $465,000, the ALF New England Division offers a community like no other full of people who have been touched in some way by liver disease, all focused on finding a cure, breaking the stigma and making a difference to patients and families living with liver disease.